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Living an adventurous life with a dehabilitating disease
November 5, 2017
Living an adventurous life with a dehabilitating disease

Living an adventurous life with a dehabilitating disease

Living an adventurous life with a dehabilitating disease

When I was diagnosed with FSHD (a type of Muscular Dystrophy) the doctors warned that intense physical activity could cause my muscles to rapidly whither away. I respect their intentions but if I’m going to loose the muscle anyway it will be on my terms, doing what I love to do, continuing to live an active life as long as I am able.

Ryan Levinson https://www.facebook.com/ryanlevinson
The FHS Society https://www.fshsociety.org/

Special Thanks
Nicole Levinson https://www.facebook.com/TwoAfloat/
Will Suto http://willsuto.com/
Challenged Athletes Foundation http://www.challengedathletes.org/
Airush Kiteboarding airush.com
Patagonia patagonia.com
Solar Stik http://www.solarstik.com/
North Sails http://northsails.com/
Octopus Linear Drives http://octopus.cmpgroup.net/
Max Prop http://www.pyiinc.com/max-prop.html
PSS Seal http://www.shaftseal.com/
ATN http://www.atninc.com/
Caframo http://www.caframolifestylesolutions.com/marine/
Pacific Offshore Rigging https://pacificoffshorerigging.com/
Global Surf Industries http://www.surfindustries.com/
Titan Chain http://titan.cmpgroup.net/
Rocna Anchors http://rocna.cmpgroup.net/
Navico / B&G http://navico.com/
Forespar http://www.forespar.com/

When I was diagnosed with FSHD (a type of Muscular Dystrophy) the doctors warned that intense physical activity could cause my muscles to rapidly whither away. I respect their intentions but if I'm going to loose the muscle anyway it will be on my terms, doing what I love to do, continuing to live an active life as long as I am able. Ryan Levinson https://www.facebook.com/ryanlevinson The FHS Society https://www.fshsociety.org/ Special Thanks Nicole Levinson https://www.facebook.com/TwoAfloat/ Will Suto http://willsuto.com/ Challenged Athletes Foundation http://www.challengedathletes.org/ Airush Kiteboarding airush.com Patagonia patagonia.com Solar Stik http://www.solarstik.com/ North Sails http://northsails.com/ Octopus Linear Drives http://octopus.cmpgroup.net/ Max Prop http://www.pyiinc.com/max-prop.html PSS Seal http://www.shaftseal.com/ ATN http://www.atninc.com/ Caframo http://www.caframolifestylesolutions.com/marine/ Pacific Offshore Rigging https://pacificoffshorerigging.com/ Global Surf Industries http://www.surfindustries.com/ Titan Chain http://titan.cmpgroup.net/ Rocna Anchors http://rocna.cmpgroup.net/ Navico / B&G http://navico.com/ Forespar http://www.forespar.com/

Living an adventurous life with a dehabilitating disease Locations

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